Care Notebook: Organizing Complex Medical Information

Care plans, visit notes, medical history, doctors’ names, and caregiver information in one place for easier sharing of care instructions for your child with complex health issues.

Learn About Cystic Fibrosis

Answers to questions families often have about caring for their child with cystic fibrosis

A Day in November

A reminder—

sometimes, just being

is enough.

A Meeting

There was a profound knowing in the
darkness of his pupils. And I wondered, more than I had ever cared to wonder
before, what he was thinking.